Conversations Before a Crisis:
Planning for End-of-Life Care

Determining The Right Type of Care

Advance Directives

Hospice Definitions

Early Hospice Referral

Preparing for Death

Patient's Bill of Rights

Keystone has published a series of informational handouts on topics relating to living with a serious illness, advance care planning, and communicating effectively when discussing end of life care options. Click on the topic below to open and print a PDF of your desired topic.

"I've Been Diagnosed...Now What?":
Guidance for those living with a serious illness

* * * * * * * * *

These additional Web resources provide valuable information regarding HIV/AIDS, palliative care, hospice and end-of-life issues ...

Inspiration & Support

www.growthhouse.org
An online resource portal to resources for life-threatening illnesses and end of life care.

www.wellspouse.org
Well Spouse provides support to husbands, wives, and partners of the chronically ill or disabled through local support groups and as a source of information and sharing experiences.

www.partnershipforparents.org
An online support network for parents of children with serious illnesses.

www.dougy.org
The Dougy Center provides a safe and supportive place for children, teens, young adults, and their families who are grieving a death to share their stories.

www.stoppain.org
Pain Medicine & Palliative Care, Beth Israel Medical Center

Caregiving

www.lotsahelpinghands.com
Lotsa Helping Hands is an online calendar planning tool making it simpler for friends, family, colleagues, and neighbors to assist loved ones in need.

www.strengthforcaring.com
Strength for Caring, provided by Johnson & Johnson, is an easy-to-navigate online resource and community for family caregivers.

www.caringbridge.org
Free, personalized websites that support and connect loved ones during critical illness, treatment and recovery.

Aging Issues - Quality of Life for Seniors

www.widerhorizons.org
WHYY Caring Community - dedicated to enhancing end-of-life care and caregiver outreach through educational programming and supportive services — especially through multimedia including radio, television and the Web.

www.comingofage.org
Inspiring opportunities for adults over 50. Coming of Age promotes age 50+ civic engagement and learning in Greater Philadelphia.

www.aarp.org
American Association of Retired Persons

Planning for End of Life Care

www.agingwithdignity.org

www.aarp.org/families/caregiving/caring_parents/valuable_documents.html

www.uslivingwillregistry.com

Facts & Education

www.aidslibrary.org/resources

www.caringinfo.org
Caring Connections, a program of the National Hospice & Palliative Care Organization

www.aahpm.org
American Academy of Hospice and Palliative Medicine

www.pahospice.org
Pennsylvania Hospice Organization

www.eperc.mcw.edu
End of Life/Palliative Education Resource Center (EPERC)

www.epec.net
The EPEC Project (Education in Palliative and End-of-Life Care)

www.hospicefoundation.org
Hospice Foundation of America

www.americanhospice.org
American Hospice Foundation

www.hpna.org
Hospice and Palliative Nurses Association

Advocacy

www.promotingexcellence.org
Promoting Excellence in End-of-Life Care

www.chionline.org
Children's Hospice International

www.medicaring.org
Palliative Care Policy Center

www.abcd-caring.org
Americans for Better Care of the Dying